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becky1972
#1 Posted : Saturday, August 06, 2011 9:01:13 PM Quote
Rank: Advanced Member


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Joined: 5/3/2011
Posts: 36
Location: lincolnshire
Hi eveyone new to the site and to RA just newly diagnosed only 39 and feel well older than that some days. Tried to read all the leaflets given but far too much to take in at once ,Feel guilty for putting on my husband is this normal even though he is great and understanding but still feel guilty.Confused
dorat
#2 Posted : Saturday, August 06, 2011 9:51:47 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 3,157
Location: Huddersfield
Hi Becky,

Welcome to the forum but sorry you have got RA at such a young age.
I am 61 and have had RA for 10 years, I live with my husband and 22 year old daughter.
You are bound to feel overwhelmed with all the information at the moment, just remember when you are reading that we are all different, the "worst case scenario" probably will not happen to you!
What treatment are you on? The drugs are scarey and not easy to get used to taking them but they really do help to prevent joint damage so well worth persevering with.
We all know what you mean about feeling guilty for putting our husbands/ partners /families through this. Try to get your husband to go to clinic appointments with you and read the information leaflets. The more he understands , the easier it will be for him to help you and know what you are going through.
Keep posting, you will get lots of support on here and you can tell it exactly like it is, because we all understand! Ask as many questions as you like, there is usually someone with an answer!
Looking forward to getting to know you.

Love, Doreen xx
AnnieB
#3 Posted : Sunday, August 07, 2011 12:01:55 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 5/19/2010
Posts: 384
Hi Becky,

Welcome. Yes it terribly mind blowing when you are first diagnosed. I was diagnosed in May 2010 and crikey I had so many questions, felt so tearful, but I quickly found this site and it really helped me, no question was to small, they have so much information on here, never be afraid to ask about something however trivia it may seem, someone on here will be able to help.

I'm Anne 51 years old married with two boys 19 and 20 and a fosterboy 9 years.

The only drug I have taken so far is Methotrexate, and apart from a few blips here and there it has been brilliant, but I'm under no illusions that it will work forever, what have you been prescribed?

With respect to putting on my husband this is something I personally try not to do, although there have been occasions when I havn't been able to drive or lift, but they need to really understand what you are going through because you do need emotional support especially at the beginning when you are trying to come to terms with it.

Keep posting and take care.

Anne x
jeanb
#4 Posted : Sunday, August 07, 2011 1:37:13 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 3,006
Location: Timperley
Hi Becky

Welcome to the forum. It's a place of encouragement, support, help and a lot of laughter! You'll soon find out that lots of people on here are slightly mad!!!!!

I'm Jean, 68, married to Steve and have one daughter and two fantastic grandkids. I've had RA for about 9 years and I still feel guilty about putting so much on my other half. I think most of us do.

It is a huge thing to take on board - especially so for you younger ones. Do you have a support group in your area? If so, maybe you could try to get along to one of the meetings as there is always someone who will understand what you are going through and chat to you.

Don't worry about asking any questions - we may not always have the answers but we try!

Look forward to getting to know you

Love Jeanxx
ceri44
#5 Posted : Sunday, August 07, 2011 1:53:29 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 9/5/2010
Posts: 364
Location: mid glamorgan
Hi Becky
Im Ceri 43 and diagnosed May 09.. Still struggling to come to terms with it, but its great that you've joined us, we all understand what you're going through and I constantly feel guilty about putting on my husband and not being able to do the things I used to do..Please ask for help when you need it though and keep posting on here. What meds are you on? Look forward to getting to know you.
Love Ceri x
Sara-R
#6 Posted : Sunday, August 07, 2011 2:10:02 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 11/20/2010
Posts: 244
Location: Cornwall
Hi Becky,

A warm welcome from me too. I'm Sara, 45 diagnosed last November and still trying to get my head around all of this. On MTX and everything's apparently under control now so I should be grateful for that but never stops me from wanting more! This forum was a god send to me when first diagnosed, no question is too silly or trivial but it was, and still is, the emotional support which I've found so helpful.

Husbands...........hmmm...........one of the trickiest things to do. Unfortunately they're on this journey too. I've been through all the feeling useless, feeling like I'm not contributing enough by earning money or doing housework, feeling guilty for not being up to cooking the tea. But these are all my feelings, not because of anything he has said or done because he gets on with it with good grace and understanding only occasionally having a slight moan. He may be an exception but I think its called love? And after all I do have to put up with him being a bit of a git sometimes!

Good luck and looking forward to getting to know you.

Sara
Julia17
#7 Posted : Sunday, August 07, 2011 6:14:01 PM Quote
Rank: Advanced Member


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Joined: 2/18/2010
Posts: 1,098
Location: farningham kent
Hi Becky

A big welcome to the forum, you will get so much understanding and support when needed and provides such a wealth of info I know sometimes I can t find anywhere else and I certainly do lots of Google searching into the RA, having only had it myself for just over two years now. I m 55 with one boy of 20 still at home and studying at a local uni. I think Sara has it right about husbands ( I was careless and lost mine, now divorced Smile ) because they love you it will never be like hard work and if the shoe was on the other foot you know you would do the same for them.

I hope the meds you have been put on are doing their job, no doubt it is methotrexate which is classed as the gold standard and works incredibly well for so many of us.

Best wishes Julia x
Kathleen_C
#8 Posted : Sunday, August 07, 2011 7:19:54 PM Quote
Rank: Advanced Member


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Joined: 12/3/2009
Posts: 1,689
Location: Durham
Hi Becky, and welcome to the forum.

It`s very hard - virtually impossible - to absorb all the information that is thrown at you when you are first diagnosed. There are so many things you want to know, and you don`t know where to start - I well remember feeling like that! I was diagnosed almost 6 years ago, and I`m still learning - but there is so much help on the forum, I bless the day I found it.

I know what you mean about feeling guilty over your husband - I think we all feel a degree of guilt because it`s sometimes tough for them too. We`ve been married almost 40 years now, and Nick is very supportive, so I know I`m lucky, but I still feel I have to put too much on him, though he doesn`t complain. You just have to think how you would do the same for him.

Do keep posting,

Kathleen C x

becky1972
#9 Posted : Sunday, August 07, 2011 9:26:50 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/3/2011
Posts: 36
Location: lincolnshire
Hi everyone on metharexate 20mg seems to be working fingers crossed but still having flare ups but time will tell.Thanks for all the words of support has picked my spirits up,as for my hubby he has read the leaflets and he says he does it cuz he loves me but feel guilty but we getting there.We have a beautiful daughter 21 and she has given us two wonderful grandkids so they keep me going Thanks again to ya all will keep posting x
Rose-B
#10 Posted : Sunday, August 07, 2011 9:46:15 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 4/20/2010
Posts: 1,749
Location: Somerset

Hello Becky

Welcome from me. Sorry that you have RA but glad you have found this site it is great for moans and groans as
well as advice.

MTX is the 'gold' drug so I hope you continue on it.

I am Rose from Somerset, aged 57, married to Mike 2 children and 1 Grand daughter. Diagnosed 2008 but still
not under control, failed on mtx, hydro and leflun and started TNF/humira on 8 the June

Keep posting

Rose
LynW
#11 Posted : Monday, August 08, 2011 1:27:39 AM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
Hi Becky

Welcome to the forum. A great place to be for support and information; lots of folk, lots of knowledge and a wealth of tried and tested experiences! Glad you have found us!

I'm Lyn, married to Mike, we have four 'growing-up' children and live in Thornton Cleveleys in north west Lancashire. I was diagnosed with RA 23 years ago, aged 31, and have since run the gamut of medication (although more options are popping up now and again thankfully!) and had several surgical procedures along the way. Currently on Enbrel, Methotrexate, Prednisolone and Naproxen, and a wagon load of pain killers! Been largely out of control for the last 12 months, but heyho things can only get better ... hopefully!

As Jean says joining a local group would be good support for you and a place to meet with others with RA. Actually, Jean is hoping you live near Bolton and I'm keeping fingers crossed you live near Blackpool!! RollEyes There are 40 or so groups now around the UK and the number is growing on a regular basis!

Pleased to hear that the Methotrexate seems to be working; it's well tried and tested and is the standard drug used in early treatment. Keep posting, look forward to getting to know you.

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

jenni_b
#12 Posted : Tuesday, August 09, 2011 3:01:50 PM Quote
Rank: Advanced Member


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Joined: 12/3/2009
Posts: 2,237
Location: nr Southampton
Hello Becky,

I am Jenni, aged 35 married with 3 children who are 16, 14 and 3.

I have severe R A which has proved very hard to treat and I have just come out of a short stay in hospital.

PLeased to welcome you to NRAS

I am married to a good man who has gone more part time to help things at home but ultimately I have 3 ladies who help me at home, I pay for them through direct payments which comes through the council. its the bees knees.

Might be worth ringing the local borough council and asking for someone assessing you for your needs.

Jenni
how to be a velvet bulldoser
smith-j
#13 Posted : Tuesday, August 09, 2011 7:50:36 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 714
Hi Becky

Welcome to the forum but sorry you have RA. It is early days and even after two years I still have to turn to my wonderful friends on this site for info and support. You will get there and once you feel a little more in charge of this disease, this will help you be more positive. The first few weeks/months after diagnosis are mind boggling in themselves. What you do have by the sounds of it is the support of a wonderful partner. This is more than half the battle. Do not feel guilty. If the boot was on the other foot I am sure you would be the same with him.

Take care and keep posting.

Jackie
xx
Debs
#14 Posted : Wednesday, August 10, 2011 3:20:41 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 9/9/2010
Posts: 77
Location: Hampshire
Hi Becky
Welcome to this wonderful forum! My name is Deborah I am 46 married to Geoff and was diagnosed last September nearly a year ago now. Things have settled down for me at the moment. It does take a while for tablets to kick in and also to get our heads around the fact that we have RA. I think this site is great as everyone understands how we feel and its great for advice.
Take care Love Deborah xxx BigGrin
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